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After Ellen Van't
Hof survived a bilateral mastectomy, six months of chemotherapy and
two months of radiation she thought that, perhaps, the worst was behind
her.
And then she noticed her
right arm was becoming swollen. The verdict: lymphedema, an accumulation
of lymphatic fluid. The culprit: the removal of 21 lymph nodes and radiation
on her right side as part of the treatment for her cancer.
Little did she know that
the diagnosis eventually would lead to her name on a patent and a product
that could help numerous lymphedema patients around the world.
Van'tHof, a Calvin
College dance professor who lives in Holland, has a bachelor's degree
in art from Calvin. She's also a lifelong seamstress. And her father
was an engineer and inventor. Add to the mix Van'tHof's unwillingness
to accept the status quo and a healthy bit of fighting spirit (during
her chemo and radiation she never missed a Calvin class) and you have
the recipe for a great story, albeit one that Van'tHof tells with more
than a bit of sheepishness.
The story began with her
doctor telling her that those missing lymph nodes had caused a key change
to her body's lymphatic transport capacity and that the swelling in
her right arm was as a result of the protein-rich lymphatic fluid collecting
in the tissues of the arm. Left untreated, this stagnant fluid could
reduce oxygen in the transport system, interfere with wound healing
and provide a breeding ground for bacteria.
Brad Kuipers, Van'tHof's
physical therapist, gave her further bad news. She would need an hour
a day of physical therapy for four weeks - essentially an arm massage
to move fluids back into the lymphatic system. And she would need to
wear a compression sleeve during the day and a series of bandages on
her arm at night for the rest of her life. At that moment, Van'tHof
admits, she cried.
But her sadness lasted only
a moment. For soon after she began scheming about ways in which to improve
her situation; specifically she began to look for an alternative to
the bandage regimen prescribed for all lymphedema patients, a regimen
she grew tired of in very short order.
"The bandages are put
on after the massage," says Van'tHof, "to keep the fluids
from returning to the arm. And they are complicated to wrap. They need
to be tighter at the bottom and then become less tight as they go up
the arm. They're also very fragile bandages. They need to be specially
washed, hung to dry, rolled just so."
After a few months of this
fussing with bandages, Van'tHof had had enough.
And she began to think about
a permanent sleeve to replace the bandages. She designed it in her head,
she says, and one day she looked for some material among her piles of
fabrics that might serve as a sleeve. She found some twill, with a bit
of lycra, and determined that it would do the trick. And then she sewed
a sleeve that replicated the gradient pressure of the bandages. She
took it to her therapist and he was impressed. It could, he said, substitute
for the bandages.
Van'tHof rejoiced. But she
did more than rejoice. She brought her work to an entrepreneur named
Phillip March, head of a Holland-based medical engineering company called
Doctors Orders (March and Kuipers already had been collaborating for
several months on sleeve prototypes). He applied for a patent with Van'tHof's
name listed as "inventor" and now the company is producing
and marketing Van'tHof's night sleeve. Already Van'tHof's physical therapist
has sent some 20 patients to the company for the product, whose advantages
over wraps are numerous.
"It takes about two
seconds to put on the sleeve," says Van'tHof, "while the bandages
take a good 15 minutes with help. For people who live alone, I don't
know how they manage the wraps. The sleeve also is thin, flexible and
smooth against the skin. I knew it couldn't have pressure points or
seams on the inside. And it's machine-washable and dryable."
Van'tHof says it does her
heart good to know that people are benefitting from her creation.
"I was at Doctors Orders,"
she says, "and a patient came in who was so happy with the sleeve
and so happy to be done with the bandages. She couldn't get over it.
And I thought 'Thank you Lord.'"
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